Evaluating the Benefits of Transition to Home Palliative Care: Pharmacological Prescriptions, Social, and Psychological Support Post-Referral

Autores da FMUP

• João Manuel Palmeira Rocha Neves

  Autor

Participantes de fora da FMUP

• Ribeiro, Hugo
• Dourado, Marilia
• Andrade, Jose Paulo

Unidades de investigação

• Biomedicina

Abstract

Introduction/Objectives: Community palliative care support teams specialize in providing at-home care under referral criteria distinct from hospital teams, focusing on functional status, limited benefit from continued hospital specialty care, and increased clinical complexity. This study aimed to assess the quality of referrals and the transition of care to a specialized community palliative care team, emphasizing adherence to established referral criteria.Methods: An observational, longitudinal, retrospective cohort study evaluated clinical health records of patients who received palliative care from a community team in 2023. We evaluated prior multidisciplinary follow-up, basic social support, medication changes made during the team's first consultation, and recurrences to hospital emergency care. The data was collected from the patients' clinical files.Results: The patient cohort had a mean age of 80.7 years (+/- 11.92), ranging from 31 to 103 years. Males comprised 56.3% of the participants, with a median follow-up time of 32 days. Primary diagnoses included cancer (50%), end-stage organ failure (26%), and neurodegenerative disease (24%). Among the deceased, 85.6% died at home. Patients showed marked changes in psychological support and social rights, as we observed an improvement from 6.8% to 100% (P = .0011) and from 47.1% to 100% (P = .01) in these supports, respectively. We also observed significant changes in pharmacotherapeutic plans, regardless of the referring team. The study observed significant difficulty in recognizing referral criteria for specialized palliative care and defining clinical complexity. Referrals were often delayed, particularly for those previously under hospital care (P = .001). Increased prescription of pro re nata medications significantly correlated with home deaths (P = .021).Conclusions: Most complex patients can be effectively monitored and die at home, reserving hospital deaths for exceptional cases requiring interventions not possible at home or due to significant caregiver burden. There was no difference in the biopsychosocial approach of patients previously followed by other teams, including hospital palliative care teams, which suggests very different approaches.

Keywords

• terminal care; referral and consultation; home care services; patient care team; community networks