Portal de investigação
UCRAID (Ukrainian Citizen and refugee electronic support in Respiratory diseases, Allergy, Immunology and Dermatology) action plan
Data de publicação:
Data Ahead of Print:
Autores da FMUP
Participantes de fora da FMUP
- Bousquet, J
- Samolinski, B
- Kaidashev, I
- Maurer, M
- Roche, N
- Kurchenko, A
- Stepanenko, R
- Tsaryk, V
- Klimek, L
- Ventura, MT
- Bedbrook, A
- Czarlewski, W
- Lysanets, Y
- Kupczyk, M
- Skolimowski, L
- Kulus, M
- Del Giacco, S
- Ollert, M
- Garcia-Aymerich, J
- Cordeiro, CR
- Yorgancioglu, A
- Schlapbach, C
- Bonaglia, C
- Bosse, I
- Buquicchio, R
- Christou, D
- Fedoruk, G
- Fontanesi, P
- Gemicioglu, B
- Giuliano, AFM
- Lepore, P
- Nakonechna, A
- Neisinger, S
- Ramanauskaite, A
- Raciborski, F
- Sitkauskiene, B
- Stepanenko, V
- Stevanovic, K
- Syzon, O
- Kvedariene, V
- de Vries, G
- van Eerd, M
- Valiulis, A
- Anto, JM
- Haahtela, T
- Schunemann, H
- Zuberbier, T
Unidades de investigação
Abstract
Eight million Ukrainians have taken refuge in the European Union. Many have asthma and/or allergic rhinitis and/or urticaria, and around 100,000 may have a severe disease. Cultural and language barriers are a major obstacle to appropriate management. Two widely available mHealth apps, MASK air (R) (Mobile Airways Sentinel NetworK) for the management of rhinitis and asthma and CRUSE (R) (Chronic Urticaria Self Evaluation) for patients with chronic spontaneous urticaria, were updated to include Ukrainian versions that make the documented information available to treating physicians in their own language. The Ukrainian patients fill in the questionnaires and daily symptom-medication scores for asthma, rhinitis (MASK air) or urticaria (CRUSE) in Ukrainian. Then, following the GDPR, patients grant their physician access to the app by scanning a QR code displayed on the physician's computer enabling the physician to read the app contents in his/her own language. This service is available freely. It takes less than a minute to show patient data to the physician in the physician's web browser. UCRAID- developed by ARIA (Allergic Rhinitis and its Impact on Asthma) and UCARE (Urticaria Centers of Reference and Excellence)- is under the auspices of the Ukraine Ministry of Health as well as European (European Academy of Allergy and Clinical immunology, EAACI, European Respiratory Society, ERS, European Society of Dermatologic Research, ESDR) and national societies.
© 2023 The Authors. Allergy published by European Academy of Allergy and Clinical Immunology and John Wiley & Sons Ltd.
Dados da publicação
- ISSN/ISSNe:
- 0105-4538, 1398-9995
- Tipo:
- Review
- Páginas:
- 2581-2595
- DOI:
- 10.1111/all.15855
- Link para outro recurso:
- www.scopus.com
ALLERGY Wiley-Blackwell Publishing Ltd
Citações Recebidas na Scopus: 8
Documentos
- Não há documentos
Filiações
Keywords
- asthma; mHealth; rhinitis; Ukrainian refugees; urticaria
Campos de estudo
Financiamento
Proyectos asociados
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Ensaio Clínico Académico (mINSPIRERS) . 2021
Utilização em estudos observacionais do Registo de Asma Grave Portugal.
Investigador Principal: João de Almeida Lopes da Fonseca
Estudo Observacional Académico (RAG) . 2020
Clinical Research Collaboration Severe Heterogenous Asthma Research collaboration, Patient-centered (CRC SHARP).
Investigador Principal: João de Almeida Lopes da Fonseca
Estudo Clínico Observacional (SHARP) . European Respiratory Society . 2021
Multidimensional phenotyping of severe asthma patients and its impact on disease control and therapeutic response - analysis from the Portuguese Severe Asthma Registry.
Investigador Principal: João de Almeida Lopes da Fonseca
Estudo Clínico Observacional (RAG-SPP-GSK) . SPPneumologia . 2022
BREATHE - An oBservational, pRimary data study to characterize severe AsThma pHenotypes and assEss disease burden across the EUCAN region.
Investigador Principal: João de Almeida Lopes da Fonseca
Estudo Clínico Observacional (RAG-AZ-BREATHE) . AstraZeneca . 2022
Seroprevalence of SARS-CoV-2 and assessment of epidemiologic determinants in Portuguese municipal workers
Investigador Principal: Bernardo Manuel De Sousa Pinto
Estudo Clínico Académico (SARS-CoV-2) . 2021
Efficiency in Spine Care ? Assessing outcomes and costs to inform healthcare improvement
Investigador Principal: João de Almeida Lopes da Fonseca
Estudo Clínico Académico . 2022
Use of secondary data, health technology assessment methods and economic modelling applied to penicillin allergy
Investigador Principal: João de Almeida Lopes da Fonseca
Estudo Clínico Académico . 2020
Using different data sources for the identification of asthma patients and those at high risk of adverse outcomes
Investigador Principal: João de Almeida Lopes da Fonseca
Estudo Clínico Académico . 2020
Phenotypes of Chronic Diseases of the Airways: Towards Multidimensional Data -Driven Profiling
Investigador Principal: João de Almeida Lopes da Fonseca
Estudo Clínico Académico . 2020
Citar a publicação
Bousquet J,Samolinski B,Kaidashev I,Maurer M,Roche N,Sousa B,Kurchenko A,Stepanenko R,Tsaryk V,Klimek L,Ventura MT,Bedbrook A,Czarlewski W,Lysanets Y,Kupczyk M,Skolimowski L,Kulus M,Del Giacco S,Ollert M,Garcia J,Cordeiro CR,Yorgancioglu A,Schlapbach C,Amaral R,Bonaglia C,Bosse I,Buquicchio R,Christou D,Fedoruk G,Fontanesi P,Gemicioglu B,Giuliano A,Lepore P,Nakonechna A,Neisinger S,Pereira A,Ramanauskaite A,Raciborski F,Sitkauskiene B,Sokhatska O,Stepanenko V,Stevanovic K,Syzon O,Kvedariene V,de Vries G,van M,Valiulis A,Fonseca JA,Anto JM,Haahtela T,Schunemann H,Zuberbier T. UCRAID (Ukrainian Citizen and refugee electronic support in Respiratory diseases, Allergy, Immunology and Dermatology) action plan. Allergy. 2023. 78(10):p. 2581-2595. IF:12,400. (1).
