Portal de investigação
ConectAR: Collaborative network of patients with asthma and carers actively involved in health research: a protocol for patient and public involvement
Data de publicação:
Data Ahead of Print:
Autores da FMUP
Participantes de fora da FMUP
- Rodrigues, T
- Fernandes, S
- Santos, AM
- Lema, IG
- da Costa, ED
- Loureiro, CC
- Boechat, JL
- Reis, AB
- Figueiredo, D
- Neves, AL
- Jacome, CRISTINA
Unidades de investigação
Abstract
Background. Patients and Public Involvement in every stage of the patient -cen-tered health research cycle is the key to the development of innovative solutions with an impact on patients' care.Methods. This protocol describes the devel-opment of ConectAR, a network to promote the involvement of patients with asthma and their carers in the health research cycle.Results. This protocol com-prehends 4 tasks: 1) define the mission, vision, governance and activities of the network through focus groups; 2) establish the communication strategy and tools; 3) test the feasibility of the network in a Delphi study on the research priorities for asthma in Portugal; 4) coordination and dissemination activities.Conclusions. This network will improve research by ensuring that patients and carers have an active role in the co-creation of impactful solutions for asthma.
Dados da publicação
- ISSN/ISSNe:
- 1764-1489,
- Tipo:
- Article
- Páginas:
- 180-188
- Link para outro recurso:
- www.scopus.com
European Annals of Allergy and Clinical Immunology EDRA S.p.A
Citações Recebidas na Scopus: 4
Documentos
- Não há documentos
Filiações
Keywords
- Patient and public involvement; citizen science; patient-centered health research; asthma; chronic respiratory diseases
Proyectos asociados
Prevalence and Characterisation of Asthma Patients According to Disease Severity in Portugal (EPI-ASTHMA) - NCT05169619
Investigador Principal: João de Almeida Lopes da Fonseca
Estudo Clínico Observacional (EPI-ASTHMA) . AstraZeneca . 2021
Effect of a Mobile App on Improving Asthma Control in Adolescents and Adults With Persistent Asthma: A Pilot Randomized Multicentre, Superiority Clinical Trial (mINSPIRERS) - NCT05129527
Investigador Principal: João de Almeida Lopes da Fonseca
Ensaio Clínico Académico (mINSPIRERS) . 2021
Utilização em estudos observacionais do Registo de Asma Grave Portugal.
Investigador Principal: João de Almeida Lopes da Fonseca
Estudo Observacional Académico (RAG) . 2020
Clinical Research Collaboration Severe Heterogenous Asthma Research collaboration, Patient-centered (CRC SHARP).
Investigador Principal: João de Almeida Lopes da Fonseca
Estudo Clínico Observacional (SHARP) . European Respiratory Society . 2021
Use of secondary data, health technology assessment methods and economic modelling applied to penicillin allergy
Investigador Principal: João de Almeida Lopes da Fonseca
Estudo Clínico Académico . 2020
Using different data sources for the identification of asthma patients and those at high risk of adverse outcomes
Investigador Principal: João de Almeida Lopes da Fonseca
Estudo Clínico Académico . 2020
Phenotypes of Chronic Diseases of the Airways: Towards Multidimensional Data -Driven Profiling
Investigador Principal: João de Almeida Lopes da Fonseca
Estudo Clínico Académico . 2020
Citar a publicação
Sá A,Rodrigues T,Fernandes S,Santos AM,Lema IG,da ED,Loureiro CC,Boechat JL,Reis AB,Figueiredo D,Fonseca JA,Neves AL,Jacome C. ConectAR: Collaborative network of patients with asthma and carers actively involved in health research: a protocol for patient and public involvement. Eur. Ann. Allergy Clinical Immunol. 2023. 55. (4):p. 180-188.
