Relief of chronic musculoskeletal pain in patients diagnosed with Ehlers-Danlos Syndrome (EDS): a questionnaire-based study

Dados básicos

Código:
Estudo Clínico Académico (Ehlers-Danlos)
Protocolo:
Estudo Clínico Académico (Ehlers-Danlos)
EUDRACT:
NCT:
Centro:
Dotação:
Ano de início:
2020
Ano de conclusão:
Estudos observacionais Nacional Não Financiado Outros

Objectivos do projeto

Estudos Observacionais (STROBE statement); Natureza do Promotor: Academia – Tipo não comercial – Iniciativa do Investigador; Tipo de Centro: Unicêntrico – Cuidados Secundários

Documentos

  • Não há documentos

Participantes

Unidades de investigação

Stakeholders - Promotores

FMUP

Outputs do ensaio clínico


Acta Reumatologica Portuguesa/ARP Rheumatology: 50 Years at a Glance - Five Decades by Five Rheumatologists

Cunha-Miranda, L.; (...); Santos, M. J.

Editorial Material. 2023


ANAEMIA IN SEVERE HAEMOPHILIA: MOVING BEYOND IRON DEFICIENCY

Chorao, P.; (...); Koch, C.

Meeting Abstract. 2021


Analysis of chronic pain descriptions for base-pathology prediction: the case of rheumatoid arthritis versus spondylitis.

Diogo A. P. Nunes; (...); David Martins de MatosAB -

Article. 10.24875/DOR.M22000014. 2022


ASSESSMENT OF TREATMENT PRACTICES OF GLUCOCORTICOID-INDUCED OSTEOPOROSIS AND THEIR ADEQUACY

Nunes, M.; (...); Vaz, C.

Meeting Abstract. 2021


AUTOANTIBODIES AND SYSTEMIC LUPUS ERYTHEMATOSUS INDUCED BY ANTI-TUMOUR NECROSIS FACTOR ALPHA THERAPY IN RHEUMATOID ARTHRITIS

Oliveira, DS; (...); Costa, L

Meeting Abstract. 10.1136/annrheumdis-2021-eular.3255. 2021

  • Open Access.

Content validity of a patient-reported experience measure (CQRA-PREM) for patients with rheumatoid arthritis in Portugal.

Rainho R; (...); Jácome C

Article. 2023


Crowned dens syndrome as a rare cause of severe cervical pain

Oliveira, D, Vaz, C

Editorial Material. 2022


Crowned dens syndrome as a rare cause of severe cervical pain [S?ndrome de Crowned Dens como causa rara de dolor cervical severo]

Oliveira, D, Vaz, C.

Article. 10.1016/j.reuma.2022.02.001. 2022


CHARACTERIZATION OF ANXIETY AND DEPRESSION AND THEIR IMPACT ON DISEASE ACTIVITY, FATIGUE AND QUALITY OF LIFE IN SPONDYLARTHRITIS PATIENTS TREATED WITH ANTI-TUMOR NECROSIS FACTOR ALPHA AGENTS

Oliveira, DS; (...); Costa, L

Meeting Abstract. 10.1136/annrheumdis-2023-eular.3205. 2023

  • Open Access.

Enablers, barriers and strategies to build resilience among cancer survivors: a qualitative study protocol.

Fernandes JB; (...); Godinho C

Article. 10.3389/fpsyg.2023.1049403. 2023


Freiberg disease: A rare cause of chronic foot pain

Oliveira, D, Costa, L, Vaz, C

Editorial Material. 10.1016/j.reuma.2022.11.004. 2023


Measurement properties of the Portuguese version of the rheumatoid arthritis patient-reported experience measure (CQRA-PREM): a cross-sectional single center study.

Oliveira D; (...); Jácome C

Article. 2024


MYOCARDIAL INFARCTION AND SEVERE HAEMOPHILIA B: A CHALLENGING BALANCED MANAGEMENT

Vaz, C.; (...); Koch, C.

Meeting Abstract. 2021


Osteoporosis management during the COVID-19 pandemic - Position paper

Rodrigues, AM; (...); Canhao, H

Article. 2021


Pancreatic Cancer and Primary Sjögren’s Syndrome: A Case Report.

Oliveira, D; (...); Almeida, J

Article. 2021


Portuguese adaptation and validation of a patient-reported experience measure for patients with rheumatoid arthritis: A protocol study.

Oliveira D; (...); Jácome C

Article. 10.1097/j.pbj.0000000000000192. 2022


Portuguese multidisciplinary recommendations for non-pharmacological and non-surgical interventions in patients with rheumatoid arthritis

Santos, E. J. F.; (...); da Silva, J. A. P.

Article. 2021


Portuguese multidisciplinary recommendations for non-pharmacological and non-surgical interventions in patients with rheumatoid arthritis.

Santos EJF; (...); da Silva JAP

Article. 2021


Portuguese recommendations for the use of biological and targeted synthetic disease-modifying antirheumatic drugs in patients with rheumatoid arthritis - 2020 update.

Fernandes BM; (...); Bernardes M

Article. 2022


Portuguese recommendations for the use of biological and targeted synthetic disease-modifying antirheumatic drugs in patients with rheumatoid arthritis-2020 update

Fernandes, B. M.; (...); Bernardes, M.

Article. 2022


Predictors of atypical femoral fractures: experience of a Portuguese Fracture Liaison Service

Cunha-Santos, F.; (...); Ferreira, J. F.

Letter. 10.1007/s00198-024-07033-4. 2024


PREVALENCE OF NEUROPATHIC PAIN AND ITS ASSOCIATION WITH CLINICAL OUTCOMES IN PATIENTS WITH PRIMARY KNEE AND HIP OSTEOARTHRITIS

Oliveira, DS; (...); Ferreira-Gomes, J

Meeting Abstract. 10.1136/annrheumdis-2023-eular.3159. 2023

  • Open Access.

PROPHYLAXIS WITH EMICIZUMAB IN HAEMOPHILIA A PATIENTS WITH INHIBITORS: DATA OF A PORTUGUESE CONGENITAL COAGULOPATHIES REFERENCE CENTRE

Sousa, M.; (...); Koch, C.

Meeting Abstract. 2021


RELIABILITY AND CONTENT VALIDITY OF THE PORTUGUESE VERSION OF THE COMMISSIONING FOR QUALITY IN RHEUMATOID ARTHRITIS PATIENT-REPORTED EXPERIENCE MEASURE (CQRA-PREM): PRELIMINARY RESULTS

Oliveira, DS; (...); Jácome, C

Meeting Abstract. 10.1136/annrheumdis-2022-eular.3087. 2022

  • Open Access.

RELIABILITY STUDY OF THE SLE-DAS, SLEDAI-2K AND PGA INSTRUMENTS FOR MEASURING SLE DISEASE ACTIVITY

Mendes, B.; (...); Ines, L.

Meeting Abstract. 10.1136/annrheumdis-2023-eular.4856. 2023

  • Open Access.

THE ASSOCIATION BETWEEN AUTOANTIBODY LEVELS AND THE OUTCOMES OF ANTI-TUMOUR NECROSIS FACTOR ALPHA TREATMENT IN RHEUMATOID ARTHRITIS - A RETROSPECTIVE COHORT STUDY WITH TWO YEARS FOLLOW-UP

Oliveira, DS; (...); Costa, L

Meeting Abstract. 10.1136/annrheumdis-2021-eular.3218. 2021

  • Open Access.

THE IMPACT OF ANTINUCLEAR ANTIBODIES INDUCED BY ANTI-TUMOUR NECROSIS FACTOR ALPHA AGENTS ON THE LONG-TERM TREATMENT OUTCOMES IN RHEUMATOID ARTHRITIS PATIENTS

Santos Oliveira, D.; (...); Costa, L.

Meeting Abstract. 10.1136/annrheumdis-2021-eular.3265. 2021


THE LONG-TERM IMPACT OF FATIGUE ON DISEASE ACTIVITY IN PATIENTS WITH RHEUMATOID ARTHRITIS TREATED WITH BIOLOGICAL DISEASE-MODIFYING ANTIRHEUMATIC DRUGS

Oliveira, DS; (...); Costa, L

Meeting Abstract. 10.1136/annrheumdis-2022-eular.3065. 2022

  • Open Access.

THE LONG-TERM PREDICTORS OF FATIGUE IN PATIENTS WITH RHEUMATOID ARTHRITIS TREATED BIOLOGICAL DISEASE-MODIFYING ANTIRHEUMATIC DRUGS

Oliveira, DS; (...); Costa, L

Meeting Abstract. 10.1136/annrheumdis-2022-eular.3060. 2022

  • Open Access.

Vogt-Koyanagi-Harada Syndrome and polyarthritis as a rare clinical manifestation

Oliveira, D; (...); Vaz, C

Letter. 2021


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